文章基本信息

标题：Children with learning disabilities: A phenomenological study of the lived experiences of Iranian mothers
本地全文：下载
作者：S. M. Kermanshahi ; Z. Vanaki ; F. Ahmadi 等
期刊名称：International Journal of Qualitative Studies on Health and Well-being
电子版ISSN：1748-2631
出版年度：2008
卷号：3
期号：1
页码：18-26
DOI：10.3402/qhw.v3i1.4968
语种：English
出版社：Taylor & Francis
摘要：Nursing as a family-oriented profession involves supporting mothers of children with learning disabilities to gain an awareness of their role. However, few studies have explored the whole experience of such mothers. This study embarks on an understanding of lived experiences of Iranian mothers who have children with learning disabilities. A qualitative approach was adopted using the phenomenology of semi-structured interviews carried out with six Iranian mothers whose children attended a special school in Tehran. The data were analysed in line with van Manen's suggestions. Two main themes were abstracted; being the centre of stress circles and being in the midst of life and death. Themes include care management challenges for self and child, experiencing through helplessness and hopefulness and experiencing self devote and self neglect. Overall, a majority of mothers experienced a stressful life. The study concludes that Iranian mothers' lived experience of having children with learning disabilities can be likened to the constant swing of a pendulum between two polarities of positive and negative feelings. This knowledge can provide an heuristic to help health staff guide mothers in adjusting to their children who have learning disabilities. Key words: Phenomenology, Iranian mothers, learning disability, child