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标题：Korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology
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作者：Jun Ah Lee ; Jae Min Lee ; Hyeon Jin Park 等
期刊名称：Korean Journal of Pediatrics
印刷版ISSN：1738-1061
出版年度：2020
卷号：63
期号：4
页码：141-145
DOI：10.3345/kjp.2019.00696
出版社：The Korean Pediatric Society
摘要：Background :For children and adolescents with cancer, going back to school is a key milestone in returning to "normal life." Purpose :In order to identify the support vital for a successful transition, we evaluated parental needs and the challenges they face when their children return to school. Methods :This multi-institutional study was conducted by the Korean Society of Pediatric Hematology and Oncology. The written survey comprised 24 questions and was completed by 210 parents without an interviewer. Results :Most parents (165/206) reported that their children experienced difficulties at reentering school, such as physical status (n=60), peer relationships (n=30), academic performance (n=27), emotional/behavioral issues (n=11), and relationships with teachers (n=4). Parents want to be kept informed about and remain involved in their children's school life, and reported good parent-teacher communication (88/209, 42.1%). In parents' perception, the proportion of teachers and peers displaying adequate understanding of their children's condition was 83.1% and 55.9%, respectively. Most parents (197/208) answered that a special program is necessary to facilitate returning to school after cancer therapy, offering emotional support (n=85), improving sociality for school adaptation (n=61), tutoring to accelerate catch-up (n=56), and continued health care by hospital outreach personnel and the school (n=50). Conclusion :In addition to scholastic aptitude-oriented programs, emotional and psychosocial support is necessary for a successful return to school. Pediatric oncologists should actively engage in improving oncology practices to better integrate individualized school plans and educate peers and teachers to improve health literacy to make them understand the needs of children with cancer.
关键词：Childhood cancer;Parents;School re-entry