文章基本信息

标题：The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
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作者：Livia Savarese ; Maria Francesca Freda ; Raffaele De Luca Picione 等
期刊名称：Health Psychology Open
印刷版ISSN：2055-1029
电子版ISSN：2055-1029
出版年度：2020
卷号：7
期号：2
页码：1-13
DOI：10.1177/2055102920971496
摘要：The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease.
关键词：adjustment;children;chronic disease;clinical interview;narrative analysis;narratives;parents;qualitative analysis