文章基本信息

标题：Families’ Perception of Classic Ketogenic Diet Management in Acute Medical Conditions: A Web-Based Survey
本地全文：下载
作者：Ludovica Pasca ; Costanza Varesio ; Cinzia Ferraris 等
期刊名称：Nutrients
电子版ISSN：2072-6643
出版年度：2020
卷号：12
期号：10
页码：2920-2926
DOI：10.3390/nu12102920
出版社：MDPI Publishing
摘要：Objective: To describe families’ experiences in managing epileptic patients undergoing ketogenic dietary therapies (KDTs) in acute medical settings. Methods: We conducted a short online survey addressed to the families of patients undergoing a classic ketogenic diet (cKD) for at least three months. The survey was composed of 18 questions exploring the following issues: demographic characteristics, epilepsy diagnosis, ketogenic-diet treatment history, the reason for emergency-ward admission and patient management, surgery-procedure management, and outcomes. Results: A sample of 50 families agreed to participate. Out of 50 patients, 33 (66%) had been undergoing a cKD for more than two years. Fifteen (30%) patients had been admitted at least once to the Emergency Room (ER), and 8.2% had undergone surgical procedures during cKD treatment. The causes of ER admission were the following: seizures, infection, trauma, and gastrointestinal or respiratory problems. In 75% of cases, blood ketonemia was not monitored during ER admission, and according to 46% of responders, the medical staff intervening did not have a basic knowledge of KDTs. Conclusions: According to both our experience and caregivers’ reports, it might be useful to search for standardized specific approaches to patients undergoing KDTs in the emergency setting.
关键词：drug-resistant epilepsy; ketogenic diet; families’ perception of care; emergency; web-based survey drug-resistant epilepsy ; ketogenic diet ; families’ perception of care ; emergency ; web-based survey