文章基本信息

标题：Novel Insight into How Nurses Working at PH Specialist Clinics in Sweden Perceive Their Work
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作者：Bodil Ivarsson ; Barbro Kjellström
期刊名称：Healthcare
电子版ISSN：2227-9032
出版年度：2020
卷号：8
期号：2
页码：180-189
DOI：10.3390/healthcare8020180
出版社：MDPI Publishing
摘要：Outpatient pulmonary hypertension (PH) specialist centers have an important role in the optimal management of pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). The aim of the present study was to gain an understanding of the work facing nurses at the outpatient PH specialist centers in Sweden. All nurses (n = 14) working at the outpatient PH specialist centers in Sweden were included. Qualitative content analysis was employed to analyze the interviews, wherein an overarching theme emerged: “Build and maintain a relationship with the patient”. Three categories described the nurses’ experiences: “Ambiguous satisfaction regarding information and communication”, “Acting as a coordinator” and “Professional and personal development”. To provide good patient care, the nurses described the key components as the ability to give information on all aspects of the disease and their availability by phone for patients, their relatives, and other healthcare resources. This requires evidence-based, specialist knowledge about the disease, its care, and treatments as well as experience. In conclusion, working as a nurse at the outpatient PH specialist centers highlight the advantages, expectations, and difficulties in working with patients with a rare and life-threatening illness. The overall knowledge and skills were high, but the nurses expressed a need for in-depth and continued training.
关键词：advocacy; allied health occupations; health information management; clinical decision-making; communication; chronic disease; holistic care; professionals-patient relations; significant others; team care advocacy ; allied health occupations ; health information management ; clinical decision-making ; communication ; chronic disease ; holistic care ; professionals-patient relations ; significant others ; team care