文章基本信息

标题：Barriers to Parental Empowerment in the Context of Multidisciplinary Collaboration on Behalf of Preschool Children with Disabilities
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作者：David Lansing Cameron
期刊名称：Scandinavian Journal of Disability Research
电子版ISSN：1745-3011
出版年度：2018
卷号：20
期号：1
页码：277-285
DOI：10.16993/sjdr.65
摘要：The purpose of this study was to explore the role of parents in multidisciplinary collaboration on behalf of their preschool-aged children with disabilities from the theoretical perspective of empowerment. The study employed a multiple-case study design, including twenty-six individual and two focus group interviews with parents and professionals supporting six children and their families. Three interconnected themes emerged from the analysis. First, parents struggled with navigating a system that was perceived as rigid and cumbersome. Second, parents often found themselves in the position of having to ‘police’ the professionals involved in supporting them. Third, parents expressed a desire to ‘just be parents’ and relinquish a degree of control to professionals. Findings highlight central dilemmas associated with the goal and process of empowerment in the provision of social, educational, and health-related support.
关键词：Collaboration;Disability;Parents;Empowerment;Preschool;