文章基本信息

标题：Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research
本地全文：下载
作者：Mhairi Aitken ; Mary P Tully ; Carol Porteous 等
期刊名称：International Journal of Population Data Science
电子版ISSN：2399-4908
出版年度：2019
卷号：4
期号：1
页码：1-6
DOI：10.23889/ijpds.v4i1.586
出版社：Swansea University
摘要：This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field. Our key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all.