文章基本信息

标题：Diseño de un programa de apoyo a la calidad de vida de familias con jóvenes y adultos con discapacidad intelectual
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作者：Natxo MARTÍNEZ RUEDA ; Almudena FERNÁNDEZ GONZÁLEZ ; José Ramón ORCASITAS GARCÍA 等
期刊名称：Siglo Cero
印刷版ISSN：0210-1696
电子版ISSN：2530-0350
出版年度：2017
卷号：47
期号：3
页码：47-68
DOI：10.14201/scero20164734767
出版社：Universidad de Salamanca
摘要：This paper is grounded on current conceptions on Family Quality of Life (FQoL) and family-centered intervention. It describes a part of the building process of a ‘Program for Supporting Family Quality of Life’, within the SAIOA-BBK frame a Gorabide’s information, guidance and support service for people with intellectual disability and their families. A major goal of this project is making proposals for professionals to fit the link between FQoL assessment and its improvement. The program was developed, constructed and tested through collaborative methods between professionals and university researchers, aiming to an increase of FQoL of families with sons or daughters among the youth and adulthood period. Program features, and how it was experimented in a pilot sample of families (n = 5) is presented.
关键词：calidad de vida familiar;intervención centrada en la familia;programa;empoderamiento;rutinas familiares;investigación-acción;formación de profesionales.