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标题：A childhood at the edge : the social and educational protection of children with AIDS
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作者：Juan Carlos González-Faraco ; Inmaculada Iglesias ; Heliodoro M. Pérez 等
期刊名称：Revista Española de Educación Comparada
印刷版ISSN：1137-8654
电子版ISSN：2174-5382
出版年度：2014
期号：23
页码：95-116
DOI：10.5944/reec.23.2014.12299
出版社：Universidad Nacional de Educación a Distancia (UNED)
摘要：El VIH/SIDA ha afectado y sigue afectando a millones de niños en todo el mundo, pero sobre todo en el África Subsahariana. Además de sus gravísimos efectos sobre la salud, esta enfermedad suele conllevar la discriminación de quienes la padecen y la vulneración de algunos de sus derechos fundamentales. Diversos organismos y agencias internacionales desarrollan, desde hace años, programas para difundir la terapia, prevenir nuevos contagios y combatir el estigma y la exclusión. La mayoría de estos programas propone acciones globales de carácter social y educativo. Una fuente de gran valor para orientarlos y adaptarlos localmente, es la experiencia vital de quienes viven con el VIH, recogida a través de sus narrativas biográficas. Como ejemplo de ello, este artículo presenta algunos de los resultados de una reciente investigación sobre niños y adolescentes españoles con VIH. HIV/AIDS has affected and continues to affect millions of children around the world, especially in sub-Saharan Africa. In addition to its very serious health effects, the disease often leads to discrimination against those who suffer from it, including the violation of some of their most fundamental rights. A wide array of international organizations and agencies has for years developed programs intended to disseminate therapies, to prevent new infections and to combat the stigma and exclusion associated with the disease. Most of these programs propose social and educational global actions. A valuable resource to guide and adapt these programs to local conditions is attaining and understanding of the life experiences of people living with HIV, collected through biographical narratives. As an example of the utility of this approach, this paper presents some results of recent research on Spanish children and adolescents with HIV.
其他摘要：HIV/AIDS has affected and continues to affect millions of children around the world, especially in sub-Saharan Africa. In addition to its very serious health effects, the disease often leads to discrimination against those who suffer from it, including the violation of some of their most fundamental rights. A wide array of international organizations and agencies has for years developed programs intended to disseminate therapies, to prevent new infections and to combat the stigma and exclusion associated with the disease. Most of these programs propose social and educational global actions. A valuable resource to guide and adapt these programs to local conditions is attaining and understanding of the life experiences of people living with HIV, collected through biographical narratives. As an example of the utility of this approach, this paper presents some results of recent research on Spanish children and adolescents with HIV.
关键词：VIH/SIDA; exclusión social; estigma; derechos de la infancia; protección social; educación global para la salud; HIV/AIDS; social exclusion; stigma; children’s rights; social protection; global health education
其他关键词：HIV/AIDS;social exclusion;stigma;children’s rights;social protection;global health education