文章基本信息

标题：Impact of Parenting a Child with Cerebral Palsy on the Quality of Life of Parents: A Systematic Review of Literature
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作者：Dr. Vivek H Ramanandi ; Dr. Trupti Rudra Parmar ; Dr. Juhi Kalpesh Panchal 等
期刊名称：Disability, CBR & Inclusive Development
印刷版ISSN：2211-5242
出版年度：2019
卷号：30
期号：1
页码：57-93
DOI：10.5463/dcid.v30i1.793
出版社：VU e-Publishing
摘要：Purpose: The implications of parenting a child with cerebral palsy (CP) are multifaceted, as parents have to cope with their child’s functional limitations and specific needs, and prepare for the possibility of long-term dependence. There has been significant research on the consequences of managing these parenting tasks. This article reviews the literature on the effects of parenting children with CP, and summarises the related factors. Methods: A systematic search of online databases was conducted and, based on the reference lists of selected articles, further studies were identified. Thirty-six articles that met the inclusion criteria were analysed. Conclusion & Implication: Parents of children with CP were found to have lower quality of life, associated with high levels of stress and depression, due to factors such as child behaviour and cognitive problems, low caregiver self-efficacy and low social support. The implications of these findings in relation to the planning and development of interventions addressing the family as a whole are discussed. The aim is to enhance parents’ competence and resources so that they are better able to cope with the demands of parenting their children.
关键词：Cerebral palsy;parenting;care giving;stress;well-being;quality of life