文章基本信息

标题：Psychometric analysis of the adult sickle cell quality of life measurement information system (ACSQ-Me) in a UK population
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作者：Owen Cooper ; Hayley McBain ; Sekayi Tangayi 等
期刊名称：Health and Quality of Life Outcomes
印刷版ISSN：1477-7525
电子版ISSN：1477-7525
出版年度：2019
卷号：17
期号：1
页码：1-11
DOI：10.1186/s12955-019-1136-7
出版社：BioMed Central
摘要：The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) has been shown to be a reliable and valid questionnaire measuring health-related quality of life (HRQoL) in the US sickle cell disease (SCD) population. The study objective was to test the validity and reliability of the ASCQ-Me for use in the UK. The US ASCQ-Me, Hospital Anxiety and Depression Scale (HADS), self-reported symptoms, and Medical Outcome Survey Short Form 36 (SF-36) were administered to 173 patients with SCD. Clinical severity was assessed by the number of painful episodes indicated by hospital admissions. The results showed that the item banks of the UK ASCQ-Me had good internal consistency. Anxiety and depression were strongly correlated with the emotional, and social item banks of the UK ASCQ-Me, with moderate correlations between the UK ASCQ-Me item banks and SF-36 components suggesting convergent validity. A confirmatory factor analysis confirmed the conceptual framework of the scale as being the same as the US ASCQ-Me, indicating construct validity. Known groups validity was found, with the ASCQ-Me being able to differentiate by SCD severity groups. The analysis of the sample shows evidence of both validity and reliability of the ASCQ-Me for use in the UK SCD population.
关键词：Sickle cell disease ; Quality of life ; ASCQ-Me ; SF-36 ; Validity