文章基本信息

标题：Moving Forward: Breaking the Cycle of Mistrust Between American Indians and Researchers
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作者：Christina M. Pacheco ; Sean M. Daley ; Travis Brown 等
期刊名称：American journal of public health
印刷版ISSN：0090-0036
出版年度：2013
卷号：103
期号：12
页码：2152-2159
DOI：10.2105/AJPH.2013.301480
语种：English
出版社：American Public Health Association
摘要：American Indians (AIs) have some of the poorest documented health outcomes of any racial/ethnic group. Research plays a vital role in addressing these health disparities. Historical and recent instances of unethical research, specifically the Havasupai diabetes project, have generated mistrust in AI communities. To address the concerns about unethical research held by some AIs in the Heartland (Midwest), the Center for American Indian Community Health (CAICH) has launched a series of efforts to inform AIs about research participants’ rights. CAICH educates health researchers about the importance of learning and respecting a community’s history, culture, values, and wishes when engaging in research with that community. Through community-based participatory research, CAICH is also empowering AIs to assert their rights as research participants. American Indians (AIs) have some of the poorest documented health outcomes of all racial and ethnic groups in the United States, 1 including some of the highest rates of obesity, diabetes, and premature death. AIs also have significantly lower screening rates for cancers and other diseases. 1 They are often overlooked by health care policymakers and the public health community. Rising mortality rates highlight the urgent need for effective preventive efforts and therapeutic approaches in this underserved group. 2 Research is necessary to evaluate and create the most effective clinical and public health approaches.