文章基本信息

标题：Crossing the Chasm of Mistrust: Collaborating With Immigrant Populations Through Community Organizations and Academic Partners
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作者：Alex Pirie ; David M. Gute
期刊名称：American journal of public health
印刷版ISSN：0090-0036
出版年度：2013
卷号：103
期号：12
页码：2126-2130
DOI：10.2105/AJPH.2013.301517
语种：English
出版社：American Public Health Association
摘要：As a community partner and an academic researcher, we experienced the direct and extended benefits of a relatively small-scale, community-engaged informed consent process that developed in an immigrant occupational health study, Assessing and Controlling Occupational Health Risks for Immigrant Populations in Somerville, Massachusetts. The practice of human participants research played a positive role in the community, and both community partners and researchers, as well as the larger academic community, reaped unexpected benefits during the five-year project (2005–2010), which continue into the present. Lessons learned from our experience may be helpful for wider application. At a time when extraordinary health disparities in the United States are coupled with an increasing reluctance on the part of vulnerable populations to support or participate in health research, it is crucial to engage with these communities to ensure the integrity of human participants research. Gaps in trust between vulnerable communities and researchers have emerged for a variety of reasons, including historical injury at the community level and the current media coverage of the lack of oversight on medical devices (e.g., metal-on-metal hip replacement problems 1 ) and clinical trials. 2 The integrity of protection should be enhanced, 3 and at-risk populations need education in the protections that exist and the benefits of engaging in health studies through such established research mechanisms as clinical trials research or newer modalities such as community-based participatory research. 4 Community-based participatory research often requires active negotiation of the social and cultural differences that separate community organizations from academic partners. We gained insights into this process from our research experience with immigrant populations living and working in Somerville, Massachusetts.