文章基本信息

标题：Stress Level among Caregivers of Thalassemia Patients
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作者：Shivansh Inamdar ; Madhuri Inamdar ; Anila Gangrade 等
期刊名称：National Journal of Community Medicine
印刷版ISSN：0976-3325
电子版ISSN：2229-6816
出版年度：2015
卷号：6
期号：4
页码：579-582
出版社：National Journal of Community Medicine
摘要："Introduction: Children with Thalassemia have to regularly attend hospital for blood transfusion and chelation therapy. Parents suffer from psychosocial burden because of expenses, stress and fear of death. Material and Methods: It is a cross sectional interview based study. Thirty five Care giving parents were interviewed in the day care centre of anemia in Choithram Hospital Indore. Two proformas were used. One for general information and the other one was the Zarit Burden Interview scale. Results: The parents were under stress (60.6%).There was no difference statistically between school and college educated caregivers of psychosocial burden. Knowledge regarding prevention of Thalassemia by pre marriage genetic counseling and testing was very poor among parents. Conclusion: The parents of Thalassemic children need to receive health education about the disease and required treatment. They need psychosocial counseling and support. "
关键词：Thalassemic children; Caregivers; Psychosocial burden; knowledge