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标题：Health-related quality of life in children and adolescents with cerebral palsy
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作者：Anja Radsel ; Damjan Osredkar ; David Neubauer 等
期刊名称：Slovenian Journal of Public Health
印刷版ISSN：0351-0026
电子版ISSN：1854-2476
出版年度：2017
卷号：56
期号：1
页码：1-10
DOI：10.1515/sjph-2017-0001
语种：English
出版社：Walter de Gruyter GmbH
摘要：Introduction In a cross-sectional cohort study, health-related quality of life of Slovenian children and adolescents with cerebral palsy was examined, and factors associated with it have been identified. Methods Caregivers of 122 children and adolescents with cerebral palsy were addressed to fill out proxy versions of HRQoL questionnaires (DISABKIDS generic and cerebral palsy module). Children and adolescents without cognitive deficit were asked to fill out the self-report versions. Results Ninety-one families of 43 children (the mean age is 10 years, 6 months, SD 1.2; 26 males and 17 females) and 48 adolescents (the mean age is 14 years, SD 0.9; 23 males and 25 females) completed proxyreports. Forty-eight individuals were able to self-report (26 children and 22 adolescents). Health-related quality of life was perceived as good. Self-reporting participants scored higher than their caregivers (mean score 75.6, SD 15.9 versus mean 72.3, SD 17.9; p=0.048). Adolescents scored lower than children in all domains (mean score 69.4, SD 19.4 versus mean 80.8, SD 10.0; p=0.01). Higher age (p<0.001), pain (p<0.001) and disturbed sleep (p=0.002) were strong predictors of worse health-related quality of life. Social Inclusion and Independence domains received the lowest scores. Conclusions Slovenian children and adolescents with cerebral palsy have a good health-related quality of life, with Social Inclusion and Independence being the weakest domains. Children reported higher scores than adolescents or their caretakers. Pain was the strongest predictor of poor health-related quality of life.
关键词：cerebral palsy ; children ; adolescents ; quality of life ; self-reports ; proxy-reports ; cerebralna paraliza ; otroci ; najstniki ; kakovost življenja