文章基本信息

标题：Improving data collection, documentation, and workflow in a dementia screening study
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作者：Kevin B. Read , MLIS, MAS ; Fred Willie Zametkin LaPolla , MLS ; Magdalena I. Tolea , PhD 等
期刊名称：Bulletin of the Medical Library Association
印刷版ISSN：0025-7338
出版年度：2017
卷号：105
期号：2
页码：160-166
DOI：10.5195/jmla.2017.221
语种：English
出版社：Medical Library Association
摘要：Background A clinical study team performing three multicultural dementia screening studies identified the need to improve data management practices and facilitate data sharing. A collaboration was initiated with librarians as part of the National Library of Medicine (NLM) informationist supplement program. The librarians identified areas for improvement in the studies’ data collection, entry, and processing workflows. Case Presentation The librarians’ role in this project was to meet needs expressed by the study team around improving data collection and processing workflows to increase study efficiency and ensure data quality. The librarians addressed the data collection, entry, and processing weaknesses through standardizing and renaming variables, creating an electronic data capture system using REDCap, and developing well-documented, reproducible data processing workflows. Conclusions NLM informationist supplements provide librarians with valuable experience in collaborating with study teams to address their data needs. For this project, the librarians gained skills in project management, REDCap, and understanding of the challenges and specifics of a clinical research study. However, the time and effort required to provide targeted and intensive support for one study team was not scalable to the library’s broader user community.