文章基本信息

标题：Forming a support group for people affected by inflammatory bowel disease
本地全文：下载
作者：Nidhi Swarup ; Saumya Nayak ; Jessie Lee 等
期刊名称：Patient Preference and Adherence
印刷版ISSN：1177-889X
电子版ISSN：1177-889X
出版年度：2017
卷号：11
页码：277-281
DOI：10.2147/PPA.S123073
语种：English
出版社：Dove Medical Press Ltd
摘要：Inflammatory bowel disease (IBD) – primarily Crohn’s disease and ulcerative colitis – is a debilitating lifelong condition with significant health and economic costs. From diagnosis to management, IBD can cause huge psychosocial concerns to patients and their caregivers. This study reports an experience of a Crohn’s patient, leading to the formation of the first IBD patient support group in Singapore and how this group has evolved in the last 4 years in supporting other IBD patients. IBD patient advocacy and/or support groups facilitate open conversations on patients’ fears, concerns, preferences and needs, and may potentially improve disease knowledge and quality of life for individuals with the condition or their families.
关键词：patient advocacy groups; Crohn’s disease; ulcerative colitis; patients; caregivers