首页    期刊浏览 2024年12月13日 星期五
登录注册

文章基本信息

  • 标题:Raising a child with down’s syndrome: perspectives from South African urban care-givers
  • 本地全文:下载
  • 作者:Megan D. Barr ; Pragashnie Govender ; Gina Rencken
  • 期刊名称:African Health Sciences
  • 印刷版ISSN:1680-6905
  • 电子版ISSN:1729-0503
  • 出版年度:2016
  • 卷号:16
  • 期号:4
  • 页码:929-935
  • DOI:10.4314/ahs.v16i4.7
  • 出版社:Makerere University Medical School(Uganda)
  • 摘要:

    Objectives: This study addresses a gap from a South African urban perspective on the knowledge and emotional responses of caregivers with children diagnosed with Down’s syndrome (DS). The study is an initial step towards informing health professionals who adopt a biopsychosocial approach, in an effort to improve interventions for both caregivers and children.

    Methods: A simple descriptive survey was utilized with 57 participants who were caregivers of children with DS. Data was analyzed descriptively using the Statistical Package for Social Scientists (SPSS) (version 21).

    Results: The caregivers’ initial reactions when discovering that the child had DS included shock, sadness and anxiety. When considering the etiology of Down’s syndrome, findings reflected that caregivers understood DS as a medical condition relating to chromosomal abnormalities rather than attribution of the syndrome to a fault of their own. Despite the immediate reactions, the caregivers’ initial emotions toward the child rather than the situation were positive and unchanged by the subsequent challenges in caring for the child. The caregivers indicated feelings of love toward the child notwithstanding the diagnosis.

    Conclusion: This study allowed for the subjective experience, perceptions and attitudes of caregivers to be investigated, and raised further questions into the deeper meanings and experiences of caregivers towards assisting practitioners in understanding the dynamics surrounding care-giving that may influence holistic interventions.

  • 关键词:Down’s syndrome; caregivers; perceptions; emotional responses
国家哲学社会科学文献中心版权所有