Applied Christian bioethics: counseling on the moral edge.
Greggo, Stephen P.
Extraordinary and precedent-setting medical human interest stories
consistently break into the news. Media commentators and bioethicists
labored over the birthing account of Sharon Duchesneau and Candy
McCullough. Both women are deaf. When they determined to become parents,
having a deaf child was highly valued. In their community, deafness is
not considered a disease or disability that provokes remorse; it is
simply a different way of life. Being a lesbian couple, Sharon and Candy
sought a sperm donor with five generations of deafness in his family.
They were eventually 'successful', as their son, Gauvin, was
born deaf. As this family story circulated, it raised multiple questions
regarding eugenic definitions, limitations, and choices. Should medical
technology be applied to design human beings? Who speaks for the human
being created? Should patient autonomy rule in setting the parameters
for the usage of available biotechnology (Sandel, 2007)?
On Easter Sunday, March 23, 2008, 18-year-old Stephanie Kuleba,
known as "Sunshine," a blond-haired, outgoing, high school
cheerleader with a near perfect grade point average tragically and
suddenly died. Sunshine was undergoing elective breast augmentation
surgery. The year prior in 2007, 347,500 women of all ages had done the
same. The decision to medically correct perceived imperfections
accounted for her assuming the risk of anesthesia. A rare reaction
called malignant hyperthermia resulted in her death. Is there reason to
reflect on what drove this woman with so much potential to pursue this
enhancement with its indisputable threats (www.TODAYShow.com)?
Newsworthy scenarios receive media attention, while everyday
bioethical conclusions contain elements common to the dramatic ones.
Specifically, the intersection of personal stories, wishes, dreams,
expectations, and motivational forces all combine within the fabric of a
social community to form a unique context where determinations are made
on the use of biotechnology. Ethics is the identification of the
parameters utilized to guide decisions regarding right and wrong (Kilner
& Mitchell, 2003). Preface the word 'ethics' with only
three letters, B-I-O, to signify that which is alive, and the decisions
encompass the weighty matters of life--along with its inevitable
partner, death. Bioethics has arisen over the past fifty years as a
distinct interdisciplinary field out of medical ethics as health care
determinations impacting human lives are no longer exclusively within
the professional domain of physicians.
Christian bioethics is the theological and philosophical
sub-specialty that explores the implication of health care practice in
light of traditional Judeo-Christian medical praxis, expanding
technology, legal/medical policy, biblical interpretation, theoretical
assumptions and theological definitions of human personhood. An agenda
shift in Christian bioethics is evident (de S Cameron, 2004). The
initial focus was on the protection of human life (abortion, euthanasia,
embryo experimentation). Today discussion centers on ways that
biotechnology modifies or manipulates human beings (cloning, genetic
modifications, cybernetics). The opening stories illustrate this shift.
Christian theology must address contemporary concerns related to
critical nuances regarding the dignity of human beings and sanctity of
covenant relationships. Conflicting positions are not uncommon. It is
imperative that discourse on these matters be transposed from
contentious debate on expansive topics into practical parameters that
impact how individuals who desire to honor the Lord of Creation can
exercise stewardship over medical technology.
Ethics committees are available to assist physicians and medical
personnel (Vaszar, Raffin, & Kuschner, 2005). Representatives from
such a committee can provide a bedside consult to families or patients
in the midst of an urgent concern. Outside of a medical crisis, ethical
consultation services are not available to resolve internal and
interpersonal dissonance. From an explicitly Christian worldview,
insightful analysis of the challenge beyond the level of medical ethics
is necessary. Christian bioethicists expose biblical and theological
perspectives by speaking out on public policy and medical practice.
Still, there may not yet be enough specificity in the literature or
explicit guidance to inform routine decisions within a patient's
range of available choices (Kilner, in press).
Aulisio (2003) identifies three features of health care that
converge to incite bioethical debates: complex decisions, value
heterogeneity (pluralism), and the recognition that individuals have the
right to determine their own health care (patient autonomy). Whereas
standards regarding procedures are thought to reside in medical
journals, boards, ethical guidelines, government regulations or perhaps
even in Christian academia, it is evident that the consumers of health
care services are in the prime position to determine direction. The
assumptions bound within a consumer-based health care system are
themselves a bioethical concern (Kilner, 2004; Kilner, Orr, &
Shelly, 1998). Nonetheless, contemporary biotechnology has brought
critical moral challenges into the everyday lives of ordinary people.
Who will seriously engage with needy families on the gritty decisions
they face in the rapidly evolving array of complex health care choices?
Medical personnel are prepared to describe options, clarify risks,
and discuss potential outcomes. Yet, medical language training--inherent
and perhaps necessary to the system--has been so infused with protective
legal maneuvers that achieving genuine dialogue may be difficult. In
certain instances, a subtle suggestion might follow exposure of an
ethical dilemma, such as: "well, if I were in your position
..." or "if this were my family member ..." Because the
medical sphere prioritizes patient autonomy, pertinent recommendations
may be absent altogether. Moreover, it must be said that conversations
to uncover embedded ethical conflicts require the luxury of time. Can
medical professionals give the gift of listening to the background story
with a discerning heart to organize the range of alternatives into the
context of a real human life?
Christ followers require assistance to apply theological guidelines
in the midst of high tech options and intense personal desires as they
handle responsibly the privilege of consumer-based medicine. Dedicated
believers are attentive to the reality that a personal deity still
governs the universe. Biblical answers regarding the use of healthcare
technology are not straightforward; dilemmas can be overwhelming.
Christian doctrine does matter (Vanhoozer, 2010; Greggo, 2010). Pastoral
care providers can aid in realizing wisdom by representing the
relationship between theology and ethical behavior (Gartner, 2010;
Greggo & Tillett, 2010). Such counsel should exceed mere declaration
of an application based upon doctrinal convictions. Care and
conversation ideally furthers prayer, thirst for the Word, attending to
the Holy Spirit, and an awareness of the awesome power of a loving and
transcendent God. The following insights for clergy were lifted from a
theme edition on pastoral counseling in the journal, Christian
Bioethics.
In a Traditional Christian context, bioethical problems are only
ostensibly moral. Decisions about how to respond to the Divine call to
chastity, to the acceptance of numerous children as a gift, to the
acceptance of unwanted children as a difficult gift, to the integration
of one's desire for health, fitness, and beauty into the overriding
pursuit of holiness, to patience in personal suffering, to works of
charity in caring for incapacitated family members, to hope for eternal
life in the face of temporal death--all these are decisions about how to
accept one's personal cross. Taking God seriously when counseling
congregants about such bioethical problems involves nothing less than
offering them the core spiritual therapy of rendering them receptive to
that Divine grace which supports their dying to themselves.
(Delkeskamp-Hayes, 2010, pp. 108-109)
Are bioethical matters explored with theological clarification from
the pulpit? Is the Christian community growing in fluency to translate
doctrinal convictions into medically oriented boundaries? Realistically,
how routine and at what depth are the pastoral exchanges that take
place? Responses to these questions will vary. This article contends
there is a substantial service gap between medical and pastoral care
that mental health professionals with a Christian worldview should
prepare to fill. The following scenarios are adopted from ordinary
stories to illustrate a potential role for MHPs.
Scenario One
Eduardo and Anna are pursuing the American dream. They are first
generation immigrants living in a modest home of their very own with
three young children. For years, they have been disconnected from their
natural parents who live in rural villages back in Guatemala. Eduardo
was sent to live with his aunt in America at the age of 11 because he
was considered to be bright, strong-minded, and have great potential to
succeed. This aunt had come to America as a teenager to serve a family
as housecleaner, cook, and nanny. She never married, nor had children.
She, along with the support of other immigrants, raised Eduardo through
his teen years and two years of community college. Now he is the proud
manager of a Burger King restaurant.
Eduardo and Anna live in a prosperous land due to the generosity of
a fellow immigrant who pioneered the way. Unfortunately, following a
stroke four years ago, Eduardo's aunt entered a nursing home. She
does not speak. Her alertness has diminished. Over the last six months,
she is barely awake. Due to the depressing nature of her condition and
living quarters, visits are few. Anna and Eduardo do not speak about
their pain. Each carries substantial guilt for not looking after his
aunt under their own roof as earlier cultural lessons had taught was the
rule. They will inherit her meager savings and have already taken funds
from those accounts to pay for new school clothes. Caring for children
in style is costly. Eduardo pushes consistently to be a winner and
cannot be distracted by his aunt's struggles. Over the past few
months, his aunt has been in and out of the hospital with difficulty
breathing connected with congestive heart failure. Evident to all, she
is dying. The nursing home repeatedly sends his aunt to the emergency
room when death appears imminent. Eduardo refuses to sign
do-not-resuscitate (DNR) forms. When consulted, he insists dogmatically
that every conceivable medical option be applied to preserve the life of
his aunt. Heart surgery remains under consideration if her strength can
be sufficiently increased to the point that she has a reasonable chance
of survival. Each occasion when the ailing aunt is raced away from the
nursing facility in an ambulance is a traumatic and jolting experience.
Barely recovered, she is discharged back to the nursing home until the
cycle recurs once again.
Anna and Eduardo attend an evangelical church. They fit. Each finds
the message and the fellowship to be a blessing. Their hearts are heavy
when they pray for their aunt. Christians are pro-life, so these
believers advocate relentlessly for their benefactor.
Scenario Two
Don and Debbie are active within a mid-sized but struggling
congregation. Don is an elder who has carried the ministry on his
shoulders during more than one lean period. He has also brought his wife
through her own dark moods as she has fought depressive episodes with
good reason. In their late thirties, with ten years of marriage behind
them, they finally had--and then lost--a single daughter, Andrea. She
had held onto life by the barest of threads for a stressful
four-and-a-half months. Prior to Andrea, there had been several
miscarriages. Debbie's blood pressure gets overly high during
pregnancy and she has difficulty carrying a child to term. Their
daughter never left the neonatal intensive care unit after her birth at
27 weeks gestation. Her kidneys never kicked in. Her heart was weak and
she had three life-threatening surgeries, not to count a persistent flow
of special procedures. When Don and Debbie held Andrea, it was a blessed
occasion. They still wonder in their silent pain if everything possible
was done to keep her with them.
As they come to terms with Andrea's death, the gnawing notion
that she may have been their only biological child fills them with more
burden than comfort. Hope might arise from an adoption plan. Debbie
tosses this aside. Imprecise knowledge of family heritage or potential
genetic flaws cannot be tolerated. A surrogate or gestational carrier is
the option seriously under investigation. A gestational carrier does not
supply the egg, but donates or is paid a fee for the use of her uterus
for delivery. The plan is to use in vitro fertilization (IVF) procedures
along with the pre-implantation genetic testing. The sex of the child
may be determined and key genetic imperfections reasonably avoided.
Debbie regularly becomes despondent over her own health issues and the
inability to safely carry a child to term. In the interest of peace, Don
buries his disturbing awareness of his wife's propensity towards
depression, along with her press for precision and urge to control. Does
the shadow of her grief grow darker under the shade of these qualities?
Desperate to have healthy children and avoid a reprise of Andrea's
loss, potential moral questions fade further into the background.
Will a medical professional, pastor, or bioethicist surface the
conflicts and motivations within these families? Who will facilitate the
outworking of a Christian identity amidst the myriad of ethical
implications blended deep into each decision?
The Complexity of Christian Bioethics
The lines in the medical enterprise have blurred regarding cure or
enhancement, medical necessity versus personal desirability, need and
choice, and treatment as intervention or directing destiny. There is
debate over what constitutes a disease, disability, or individual
difference. Perhaps the limits of life are not givens, but baselines to
be extended. Biotechnology has created options along with novel
predicaments (Mitchell, Pellegrino, Elshtain, Kilner, & Rae, 2007).
Globalization has opened new markets for 'medical' tourism. If
an advantageous or desirable treatment is unavailable or cost
prohibitive in our geographic area, travel can be booked to a
destination where the rules are favorable, the price negotiable, and the
expertise ready to oblige.
As discretionary medical decisions become common, medicine has to
grapple with ethical questions that divulge moral convictions.
Applications in health care emerging from non-theistic traditions with
no appreciation for priorities derived from Scripture under the
supervision of the Holy Spirit have long been the bane of Christians
engaged in the psychological domain. One's theological
understanding of matters regarding human nature, teleology, destiny,
sanctification, and autonomy are influential when conducting a clinical
mental health assessment and targeting outcomes. Will the applied
therapeutic effort redeem self from the effects of sin or might it, even
unwittingly, stimulate sinful self-mastery? Consider a parallel, medical
predicament (Kilner & Mitchell, 2003; Meilaender, 1996). Does the
selected medical procedure take into account a self submitted to the
will of a loving Creator? Or, does the option under pursuit demonstrate
a corrupt attempt to deny the Creator's limits by sneaking fruit
from the tree of life? How might believers discern the division between
God-honoring stewardship and flagrant self arrogance? Do we seek God in
suffering or avoid him by lessened or averted pain? Is the transition
between life and death placed in God's hands or is life prolonged
for every possible second because the hereafter is feared, unknown, and
undesirable?
The Christian Association for Psychological Studies (CAPS) has
invested over 50 years establishing a credible interface between
Christianity (revelation based worldview) and psychology (empirically
oriented methodology) (Stevenson, Eck, & Hill, 2007). It is not
coincidental that this movement coincides with the rise in bioethics and
in particular, its uniquely Christian branch. Values emerge from
worldview. Distinctions between the prevailing secular and the Christian
sacred are evident throughout all of medicine. Given that
psychologically oriented treatment has been perceived in conservative
Christian circles as particularly suspect, transparency in the
relationship between Christianity and mental health treatment has been
central for role integration (Hathaway, 2009). The emphasis in the
broader medical field on empirical evidence and 'hard' science
may have minimized secular/sacred tensions as bioethical concerns were
obscured behind the curtain of 'best practice.' The expanding
range of available technology accompanied with a consumer orientation
has pulled back this veil and exposed crucial junctures that turn on
personal preferences, cultural context, values, and ultimately
worldview. The medical sphere is witnessing more overt conflict
surrounding the appropriateness of intervention options and a Christian
worldview. Interestingly, addressing the roots and ramifications of such
strain is inherent in the vision of CAPS and in the activities of its
membership.
The intention in these pages is not to articulate the intricacies
of how to form or inform a distinctively Christian rubric for bioethics.
Rather, the objective is to motivate a sustained interest within
Christian MHPs to participate in the pursuit of Christian conventions to
obtain wisdom. Organization resources are available such as the Center
for Bioethics and Human Dignity (www.cbhd.org); Christian Medical and
Dental Association (www.cmda.org); and the National Catholic Bioethics
Center (www.ncbcenter.org). There are targeted academic journals:
Christian Bioethics and Ethics & medicine: A Christian perspective
on issues in bioethics. There are papal pronouncements such as Dignitas
Personae (2008). This is an emerging practice area where CAPS members
would do well to encourage one another to develop the necessary
competencies to serve clients well (CAPS, 2005). Given the attention
directed within CAPS to the intersection of professional ethics and
empirically oriented treatments with Christian values, likeminded MHPs
may be uniquely qualified to venture into bioethical conversations where
presenting problems, clinical concerns and spiritual formation are all
too closely entwined.
There is an unfortunate vacancy on medical and pastoral
collaborative teams that Christian MHPs are in an excellent position to
fill. There are critical professional ethical barriers that each
applicant will need to address (e.g., informed consent, respecting
client autonomy, value clarification versus imposition, and client
confidentiality). Counseling to explore a bioethical theme requires that
the MHP consider at length the role distinctions between a medical,
pastoral, and mental health clinician. A return to the case scenarios
will bring out select concerns; then the added value of MHP expertise
will be articulated.
Identifying Bioethical Concerns
Eduardo and Anna have the utmost desire to honor the kind person
who made their immigration, marriage, and future possible. Eduardo
genuinely believes he is applying a pro-life position as their family
merges into a local Christian fellowship. Based on an abbreviated review
of the details, a pastoral staff member prays with them for the
aunt's recovery. Between the nursing home physician and rotating
hospital staff, there is no one to engage with Eduardo to deliberate on
the ethical aspects of the treatment cycle that is being perpetuated.
What does a pro-life position look like at the end of life when medical
procedures are futile (Mitchell, Orr, & Salladay, 2004)?
Certainly, his aunt absolutely maintains her dignity as a human
being with full personhood for she is created imago Dei (Saucy, 1993).
Eduardo does well to reject any suggestion that personhood is lost as
the ability to engage with others disappears. Even in her disabled and
diminished capacity, she must be treated with the recognition that there
is a full human person beneath her ragged skin, relentless sleep, and
routine silence. Nonetheless, this could be the opportune moment to
consider palliative care. What would be required for her to be as
comfortable as possible as she awaits transition into eternal life? Is
the persistent game of patient ping pong between hospital and nursing
home restoring health, or is it prolonging, even exacerbating, her
suffering? These questions may not be impossible for an objective pastor
or MHP to entertain. There are ample reasons why Eduardo is not capable
of considering such a perspective without compassionate, informed, and
engaging assistance. Arriving at a comprehensive understanding with
Eduardo of being pro-life and Christian must take into account his past,
his personality, and implanted cultural promises. A robust understanding
of the term 'pro-life' would never lose sight of eternity with
a Savior who has prepared a place for those who are His (I Cor.
15:21-16; Phil. 1:20-21). Christians embrace the reality that in Jesus
Christ, death has lost its painful sting (I Cor. 15:55).
Debbie and Don are in the midst of a serious crisis that has
multiple layers. The predicament involving the death of a daughter born
premature has left their future precarious. As they contemplate their
dreams, do they have sufficient support to sustain confidence in the
source of their hope? Is their faith in God's hands or might they
relentlessly seek medical options to subdue their grief? Medical
technology 'failed' them once. Could either feel entitled to
medical assistance to realize their goals? Is there a danger of
pondering obsessively, eugenic, or 'good genes' as they press
on, earnest to attain a picture perfect family? Fertility procedures
from artificial insemination to egg donation to surrogacy to gestational
carrier are available. These could provide Debbie with exactly what she
longs for in terms of a biologically related child. Or, eggs or sperm
could be secured or purchased to achieve a child with a predictable
combination of beauty, brains, and buffers against illness. If they
acknowledge by informed consent the risks involved, there are
permissible options. Would such a direction be a Christ-honoring
approach that fits Debbie and Don as people of faith? What defines the
sanctity of marriage? Is there any separation between what can be done
and what should be done? What would happen to unused or imperfect
embryos? What are the potential hazards involved with a surrogate or
carrier? One underlying risk might be this: given Debbie's
temperament, how likely is she to be satisfied with this arrangement and
its results in the years ahead? How might additional pain impact this
couple weighed down by grief and desperately seeking children? A MHP
might wonder and assess if the marriage has the stamina to survive the
losses of the past and those that may lie ahead.
Helping Professionals Coaching Christian Conversation
Three basic techniques demonstrate the advantage of having an MHP
enter bioethical conversations: 1) listening for central self and
relational features; 2) linking to core story themes and values; and 3)
leaning into critical personality styles. For clarity, this utilization
of such core professional skills is not novel, nor is this a sole method
to determine Christian wisdom (Pro. 1:7; Ps. 1:1-3). These are
components of a wisdom search that are plainly valuable, but not
typically available through the routine services of medical or pastoral
staff. These exhibit contributions that MHPs can make to navigate the
service gap for Christians striving towards the realization of a
Christian identity and grappling with immediate medical choices. A MHP
supplements, but does not substitute for, medical and pastoral
personnel. The emphasis swings from an abstract bioethical trial to the
intrapersonal quandary, interpersonal ties, and transcendent resources.
One fundamental to the supportive consultation process is empathic
listening (Egan, 2010). Beginner helpers are taught to start with
primary level accurate empathy statements and systematically make
meaningful connections. Facts are heard. More importantly, emotionally
laden convictions are acknowledged with compassionate feedback. As the
conversation deepens, the use of advanced accurate empathy demonstrates
comprehension of underlying values, storylines, and the threads that
weave together priorities throughout the narrative. For believers, there
is the persistent awareness that one's self story is to be under
reconstruction as it is woven into God's mission to further the
gospel--God's story of creation, fall, redemption and restoration.
Thus, helpers respectfully assist in the revision of distorted beliefs
and tangled emotional-relational schemas. There is no explicit reason
why pastors or medical personnel could not do the same. Conditions
related to time, role, and agenda align at cross purposes to bring
advanced empathic listening into these conversations.
Reflective listening is designed to identify the potent forces that
contribute to decisions. A concise assessment grid, known as the "4
S System" is useful to discern coping resources and influential
variables (Goodman, Schlossberg, & Anderson, 2006). The model's
headings are situation, support, strategies, and self. The situation
variable steers the listener to attend to those triggers, events, or
expectations that force change or instigate a life transition that
stresses the patient. Support assessment requires a wide angle scan over
the convoy of social support, ranging from intimate alliances to distant
acquaintances. The counselor should pay attention to any gaps that are
apparent within it. Strategies are those engrained coping patterns,
assumptions, and notions of what works best based upon past experience
and ingrained beliefs. The self factor guides the listener to notice not
only the demographic and developmental features, but also the
accompanying long-term issues, social preferences, and certainly,
personality style. The addition that is critical for our purpose is to
add a fifth "S", spirituality. Though spiritual beliefs,
relationships, and resources could be treated as a distinct category, my
preference is to assume that Christian spirituality permeates each of
the other four areas as the Holy Spirit moves. God is at work within the
situation, Jesus Christ is an available supportive ally quickening
Christian fellowship, and Scripture guides the selection of strategies
through wisdom as it moves self toward sanctification and re-creation.
For Eduardo, the strategy to push hard and press ahead into the
American dream may need to be brought under review. This has served both
him and Anna well. Yet, they may be in a position for a unique season of
service. Or, what if assistance could be recruited from within their
cultural community to make home care possible? What network of support
tied to their cultural past might be available to assist in the present?
Does a pro-life approach insist that medical personnel employ every
extensive procedure to delay the aunt's progression towards heaven
where she will be whole once again?
Given the chance to pour out their hearts, Don and Debbie might
reveal a longing for substantial comfort surrounding the loss of their
daughter. There is an intense need to network with other couples who
face fertility concerns. Most importantly, pastorally oriented input
coupled with psychologically astute sensitivity could raise awareness of
the indispensable fifth 'S' to help these Christ followers
discern once again their spiritual commitments. Don and Debbie are under
undue affliction during this season of distress.
Listening well to recognize the full framework provides the MHP
with opportunities to link the immediate dilemma regarding appropriation
of biotechnology with personal narratives. How does the gospel story mix
with their own story? The concept of linking is to connect ethical
principles that guide other areas of life to this bioethical concern. In
ethical consultation, this is known as following the value path of the
patient. Medical decisions make core values transparent. The most common
value conflict investigated is one between medical procedure and the
value path of a patient. Is this not the precise assumption of Satan
when speaking to God about Job's assumed faith? "Skin for
Skin!" Satan replied. A man will give all he has for his own life.
But stretch out your hand and strike his flesh and bones, and he will
surely curse you to your face" (Job 2:4-5, New International
Version). From a Christian bioethics perspective, there is intentional
effort to link the value paths within patients to the medical options
under consideration. When inner values are brought to the surface for
examination, the Lord provides grace to evaluate what is excavated. Old
self motives may conflict with being a new creation in Christ. Might the
desire to apply an alternative, consciously chosen value take
precedence? A helping consultant will have words, phrases, and
convictions from the hearts of those being coached to blend back into
the conversations. In such moments, messages from pastors, phrases from
the Word, themes from Scripture and even underlying theological premises
discerned by bioethicists as relevant to their dilemma, can be heard and
internalized. Feedback can link the medical decisions under
consideration to the faith story of their lives in light of the ever
relevant good news of the gospel. This provides powerful assistance.
Lastly, the most unique contribution that a professional helping
consultant can make in encouraging a deeper contemplation of bioethical
issues is to notice how personality patterns influence the direction of
the bioethical choices. Aligning the ethical conversation with the
dominate personality tendencies is what is meant by leaning into the
personality pattern. This fits under the heading of self from the
"4 S system." Within a Christian helping framework, picture
ways that self and identity is exposed for the sake of transformation.
What qualities might the Holy Spirit seek to touch in order to
accomplish particular putting on and putting off of these evident
characteristics?
Theodore Millon and those investigating his model of personality
have demonstrated how personality variables tie to vulnerabilities in
physical and mental health issues. Beyond the risk factors associated
with personality types, proposals have shown how compliance with medical
treatment is improved when personality features are taken into account
by medical professionals (Harper, 2004). The material from behavioral
medicine on personality is vast and involves the interface of many
disciplines and concepts. The intent in this context is to suggest that
in approaching conversations regarding bioethical issues, recognition of
prevailing personality features may enhance cooperation and ease
misunderstandings. When the personality patterns of the client are
recognized, helpers can participate with those tendencies in a
productive manner.
Eduardo was identified as having an intense and strong will early
in life. He certainly has made an impression on health care providers
who know that he expects them to keep his aunt alive. Might a
competitive, mildly detached, overly self-focused style describe him? If
so, does his drive for material success have implications for the health
care decisions being made on behalf of his aunt? And if this hypothesis
has validity, Anna's views would be crucial to bring balance and
perspective. Bringing forward Anna's input might yield cultural
perspectives and resources. It may take an authoritative style challenge
to slow Eduardo down long enough for him to consider an alternative
perspective on his aunt's medical intervention plan. Direct
physician attention or straight words from a pastor might be
particularly useful. Given that his aunt's remaining lifespan could
be short, in what ways can her life of service be honored in her death?
Eduardo may benefit from firm and hard reflective questions. These need
not be harsh. Penetrating query may be useful to help Eduardo hear what
his heart--and perhaps the Holy Spirit--could be telling him.
Debbie is struggling with complicated grief and related depression.
In what ways does she persistently blame herself for Andrea's
death? This may be best treated in therapy and a referral is indeed
warranted. It does suggest that making a critical decision regarding
utilization of a surrogate may require vigilant examination given her
vulnerability at this juncture (ASRM, 2004). Furthermore, the
plausibility of a negativistic personality orientation with chronic
discontentment set in an oppositional and resentful posture may be worth
considering. Given the overlay of grief tied to the recent loss of a
child, thoughts in this direction should move cautiously. Nevertheless,
judgment on major decisions will need to be supplemented with wise
Christian counsel. If a hypothesis regarding perfectionist and
negativistic tendencies has merit, then Don will require encouragement
to remain steadfastly committed to his wife. He has done this with his
church. He may well benefit from having a consistent support close at
his side to permit clear judgment when faced with crucial decisions.
Debbie could have a tendency to burn out those who assist; a broad
social network within the church may be advisable.
These are samples. There is no intention to insinuate the presence
of any entrenched Axis II disorders. A medical situation automatically
places stress on personality, bringing out underlying, perplexing, and
at times, troubling traits. From a Christian perspective, this is a
normal occurrence. The wisdom that the Lord provides promises that these
are ripe moments for the development of character, maturity in the
faith, and perseverance (James 1:1-12). The strategy for consultation is
to apply help that fits with and adequately addresses the personality
traits of the person in distress.
Autonomy, Dual Roles and Christian Discernment
A biblical grasp of imago Dei reveals that there is no unrestricted
entitlement for individuals to determine how to apply biotechnology
based on personal desires alone. Dominion over creation is inherent in
our nature according to the Genesis account of human formation (Gen.
1:26-31, Wheeler, 1996). The application of tools, technology, and
creativity for populating the earth is a stewardship function reflecting
divine authority, will, and interest in human choices. The effects of
the fall can be managed or reversed via divine grace filtered through
human ingenuity. Like those who sought to build a tower reaching to
heaven, human efforts that ignore or defy the Creator by failing to
honor him exemplify what can be done but not what should be done. Human
beings were created to relate to, rest in, and depend on their Creator.
Technology is a gift that arrives in our world as a result of the
endowments infused into human creativity and rationality. These
characteristics were placed within human beings by our Creator. Thus,
their use is to be returned to him as an act of worship and praise. The
secular culture and medical profession are not expected to grasp this
principle as a criterion for moral action. Those who are
ecclesia--called out as wholly his for the purpose of becoming
increasingly holy--are to place autonomy, control, and will under a
redeemed relationship with the Creator.
This apparent rejection of the standard of autonomy as authorizing
the use of biotechnology is admittedly both controversial and
counter-cultural. It constitutes a genuine professional ethical crisis,
for it raises questions regarding adherence to our professional codes of
ethics. Fidelity to the welfare of the patient is paramount and informed
consent is a procedure designed to facilitate and protect patient
autonomy (Corey, Corey, & Callanan, 2010). The suggested utilization
of helping technology tools--identified in basic terms as listening,
linking, and leaning--to explore more thoroughly the moral application
of biomedical technology could mistakenly be portrayed as exercising
dual roles. The MHP who offers consultation to assist the patient must
clarify distinctions between pastoral, medical and professional
counseling services. In the interest of mutual exploration, there is a
need for MHPs to resist the urge to impose the values of a presumed
Christian worldview. While this could indeed be a potential concern, it
would not necessarily constitute a conflict of interest with confessing
Christians who voluntarily seek consultation from an MHP who declares
these allegiances in a forthright and direct fashion. The intent of the
counseling conversation would be to humbly further a patient's
interests by jointly seeking divinely granted wisdom in the midst of
tempting contemporary choices. This proposal runs parallel to the
recommendations offered by Yarhouse (2004) in conjunction with
explicitly Christian therapy for those who experience same sex
attraction. Acquiring counseling services to assist one to explore
bioethical decisions from the vantage point of Scripture, theology, and
the Spirit's enlightenment could be treated as a means to support a
commitment to live out a consistently Christian identity. The goal is
not only to clarify a person's value path, but to lay that path
before the Creator and ask, Lord, is this your way through a narrow
gate?
Additionally, a helping professional must be extraordinarily
upfront regarding the purpose and the type of input that could be
offered. Concern over professional authenticity within this type of
consultation assistance is valid. If an MHP presents services as a
'Christian' counselor, additional clarification of informed
consent is necessary to separate or define the insinuation that pastoral
and professional roles may be combined. Practitioners need to grasp the
potential role shift from that of patient advocate, to the prophetic
voice of a particular religious community, a cultural representative, or
a promoter of spiritual values. Christian counselors recognize variant
roles and work towards transparency regarding values exposed (Greggo
& Parent, in press).
The ideas articulated in this article are not aimed towards those
who serve on formal committees on bioethics. Those committees are
designed to assist patients and their families while protecting
organizations and professionals (Vaszar, Raffin, & Kuschner, 2005).
Committees tend to favor an 'ethics facilitation' model built
on a presumed neutral middle ground between imposing a moral agenda on
one end (outcome) and promoting arrival at a consensus at the other
(process) (Aulisio, 2003). Ethics facilitation seeks a happy medium
between an authoritarian approach that lays claim to a predetermined
outcome and a model of process facilitation where stakeholders are
coerced to arrive at consensus. Institutional ethics committees have
their purpose. In order to arrive at a kingdom orientation, the use of
psychologically informed, theologically grounded consultations may
activate what are ultimately God-honoring conversations.
The accusation could be raised that any effort to apply
'Christian' bioethics would by definition be authoritarian
since there is a frank appeal to represent a divine and absolute
authority through the application of revelation. Such an objection
recognizes a genuine risk but misses the service potential. The intent
is to clarify values regarding health care within a Christian moral
structure that is informed by Scripture, faith tradition, and the wisdom
of the community. Christ followers ponder the nuanced implications of
medical choices. Christian discernment empowered by the Holy Spirit can
follow. MHP consultations are not promoted to adjudicate conflict
(Baylis & Brody, 2003). The goal is to host value-clarifying
dialogue in the pursuit of Christ-honoring virtue. Medical professionals
can poignantly clarify options and risks. Theologians, biblical
scholars, and bioethicists can guide pastors and flocks to recognize
biblical limits. MHPs can support those in distress to make God honoring
moral choices in the midst of real life.
Vision for Ministry at the Moral Edge
The field of Christian bioethics has alerted the faithful that best
medical practice is not solely a matter of clinical guidelines
interfacing with what a patient desires or can afford. Our Creator
oversees these activities. Scripture offers a perspective on suffering
and how to express gratitude for relief. Theologically grounded
convictions do impact decisions made in the realm of biotechnology. Yet,
believers are not well prepared to enter discussions with health care
professionals when armed only with an indoctrinated list of do's
and don'ts. It would be better for those on a journey of faith to
be equipped to critically apply doctrine with a desire to mature through
the ministry of the Holy Spirit. Christians can enjoy the blessings that
medical advancements offer as redemptive expressions of grace. And,
people of faith persistently recall the promise of eternity where every
tear is wiped from the eyes of those who suffer.
Christians who counsel can host conversations that awaken awareness
of the Creator regarding the moral edge of bioethics. In order to meet
professional expectations regarding competency, every consultant
collaborating on bioethical matters will seek to become conversant with
medical terms, procedures, ethical principles, and the roles of each
shareholder in the decision. In order to represent one's faith
tradition, familiarity with kingdom ethics decision models and
application to bioethical matters is critical.
Readers of this journal can contribute further through dedicated
research and integrative efforts. Survey research is necessary to
determine how MHPs with Christian worldview convictions are involved in
bioethical dialogue and to identify distinctive views. CAPS publications
and conferences could address specific concerns. The Christian
psychological literature lacks groundbreaking articles on bioethical
topics and input by Christian ethicists. Case discussions in academic
settings could raise awareness of the moral edge embedded in medical
options. Are cases such as those presented here offered to those
apprenticing to enter the profession? Folks like Eduardo, Anna, Don and
Debbie would benefit from informed bioethical conversations in their
surrounding faith communities and this does include our counseling
offices.
References
American Society for Reproductive Medicine (ASRM). (2004).
Infertility counseling and support: When and where to find it. Patient
Fact Sheets, ASRM, Retrieved May 5, 2010, from
http://www.asrm.org/uploadedFiles/
ASRM_Content/Resources/Patient_Resources/Fact_Sheets_and_Info_Booklets/Counseling-Fact.pdf.
Aulisio, M. P. (2003). Meeting the need: Ethics consultation in
health care today. In M. P. Aulisio, R. M. Arnold, & S. J. Younger
(Eds.), Ethics consultation: From theory to practice (pp. 3-22).
Baltimore, MA: Johns Hopkins University Press.
Baylis, F., & Brody, H. (2003). The importance of character for
ethics consultants. In M. P. Aulisio, R. M. Arnold, & S. J. Younger
(Eds.) Ethics consultation: From theory to practice (pp. 37-44).
Baltimore, MA: Johns Hopkins University Press.
Christian Association for Psychological Studies (CAPS). (2005).
Ethics statement of the Christian Association for Psychological Studies.
Retrieved May 11, 2010 from
http://www.caps.net/index.php?option=com_content&view=article&id=253&Itemid=131.
Corey, G., Corey, M., & Callanan, S. (2010). Ethics and Issues
in the helping profession (9th ed.). Pacific Grove, CA: Brooks Cole
Publishing.
Delkeskamp-Hayes (2010). Psychologically informed pastoral care:
How serious can it get about God? Orthodox Reflections on Christian
Counseling in Bioethics. Christian Bioethics, 16, 79-116. Retrieved May
6, 2010 from http://cb.oxfordjournals.org .
de S Cameron, N. M (2004). Bioethics in Christianity. In S. G. Post
(Ed.) Encyclopedia of Bioethics (3rd ed., pp. 402-405). New York, NY:
Macmillian Reference.
Dignitas Personae (2008). Congregation for the doctrine of the
faith: Instruction Dignitas Personae on certain bioethical questions.
Retrieved August 3, 2009 from
http://www.vatican.va/roman_curia/congregations/
cfaith/documents/rc_con_cfaith_doc_20081208_dignitas-personae_en.html.
Egan, G. (2010). The skilled helper: A problem-management and
opportunity-development approach to helping (9th ed.). Pacific Grove,
CA: Brooks/Cole.
Gartner, S. (2010). Staying a pastor while talking like a
psychologist? A proposal for an integrative model. Christian Bioethics,
16, 48-60.
Goodman, J., Schlossberg, N. K., & Anderson, M. L. (2006).
Counseling adults in transition: Linking theory with practice (3rd ed.).
New York: Springer.
Greggo, S. P. (2010). Forming the performers: Canon sense and
"common sense." Edification: The Transdisciplinary Journal of
Christian Psychology, 4, 20-24.
Greggo, S. P., & Parent, M. S. (in press). Better birth: Wisdom
from counseling. In John F. Kilner's (Ed.) Why bioethics needs the
church? Wisdom from the Bible, theology, ministry, and the professions.
Grand Rapids, MI: Zondervan.
Greggo, S. P. & Tillett, L. (2010). Beyond Bioethics 101: Where
theology get pastoral and personal. Journal of the Evangelical
Theological Society, 53(2), 349-363.
Hathaway, W. L. (2009). Clinical use of explicit religious
approaches: Christian role integration issues. Journal of Psychology and
Christianity, 28, 105-112.
Harper, R. G. (2004). Personality-guided therapy in behavioral
medicine. Washington, D.C.: APA.
Kilner, J. F. (2004). Allocation of Heath Care Resources. In S. G.
Post (Ed.) Encyclopedia of Bioethics (3rd ed., pp. 1107-1115), New York,
NY: Macmillian Reference.
Kilner, J. F. (Ed.). (in press). Why bioethics needs the church?
Wisdom from the Bible, theology, ministry, and the professions Grand
Rapids, MI: Zondervan.
Kilner, J. F., & Mitchell, C. B. (2003). Does God need our
help? Cloning, assisted suicide, & other challenges in bioethics.
Wheaton, IL: Tyndale House Publishers.
Kilner, J. F. Orr, R. D., & Shelly, J. A. (Eds.). (1998). The
Changing Face of Health Care: A Christian appraisal of managed care,
resource allocation, and patient-caregiver relationship. Grand Rapids,
MI: Eerdmans.
Meilaender, G. (1996). Bioethics: A primer for Christians. Grand
Rapids, MI: Eerdmans.
Mitchell, C. B., Orr, R. D., & Salladay, S. A. (2004). Aging,
death, and the quest for immortality. Grand Rapids, MI: Eerdmans.
Mitchell, C. B., Pellegrino, E. D., Elshtain, J. B., Kilner, J. F.,
& Rae, S. B. (2007). Biotechnology and the human good. Washington,
D.C.: Georgetown University Press.
Sandel, M. J. (2007). The case against perfection: Ethics in an age
of genetic engineering. Cambridge, MA: Belknap Press of Harvard
University Press.
Saucy, R.L. (1993). Theology of human nature. In J.P. Moreland
& D. M. Ciocchi (Eds.), Christian perspectives on being human (pp.
8-17). Grand Rapids, MI: Baker Books.
Stevenson, D. H, Eck, B. E., & Hill, P. C. (Eds.). (2007).
Psychology & Christianity integration: seminal works that shaped the
movement. Batavia, IL: Christian Association for Psychological Studies
(CAPS).
Vaszar, L. T., Raffin, T. A., & Kuschner, W. G. (2005).
Hospital ethics case consultations: Practical guidelines. Comprehensive
Therapy, 31, 279-283.
Vanhoozer, K. J. (2010). Forming the performers: How Christians can
use canon sense to bring us to our (Theodramatic) senses. Edification:
The Transdisciplinary Journal of Christian Psychology, 4, 5-16.
Wheeler, S. E. (1996). Stewards of life: Bioethics and pastoral
care. Nashville: Abingdon Press.
Yarhouse, M. A. (2004). Homosexuality, ethics, and identity
synthesis. Christian Bioethics, 10, 239-257.
Stephen P. Greggo
Trinity Evangelical Divinity School
Author
Rev. Stephen P. Greggo, Psy. D. is a Professor in the Counseling
Department at Trinity Evangelical Divinity School, Deerfield, IL. Dr.
Greggo is also Director of Professional Practice at Christian Counseling
Associates in Delmar, NY. His interest areas are in counseling and
Christian worldview, contemporary clinical practice, groups, supervision
and raising up the next generation of mental health professions for
kingdom service.
An earlier version of this article was presented at the 2008
Christian Association for Psychological Studies international conference
in Phoenix, AZ on April 5, 2008 under the conference theme of imago Dei
in the Spirituality/Pastoral Care track. The author wishes to
acknowledge research assistant, Lisa Chu, for her support in the
preparation of this manuscript. My appreciation also goes out to the
anonymous reviewers who contributed valuable insights and suggestions.
Correspondence concerning this article should be addressed to Stephen P.
Greggo, Counseling Department, Trinity Evangelical Divinity School, 2065
Half Day Road, Deerfield, Illinois 60015. E-mail:
<
[email protected]>