文章基本信息

标题：Telling the story of childhood cancer: an evaluation of the Discovery Interview methodology conducted within the Queensland Children's Cancer Centre
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作者：Penelope J Slater ; Shoni P Philpot
期刊名称：Patient Intelligence
印刷版ISSN：1179-3198
电子版ISSN：1179-3198
出版年度：2016
卷号：8
页码：39-46
DOI：10.2147/PI.S105660
语种：English
出版社：Dove Medical Press Ltd
摘要：This paper evaluates the process and impact of the Discovery Interview methodology developed in the National Health Service and applied in the Queensland Children's Cancer Centre. It shows how this methodology supports the family-centered care philosophy of the organization and gives staff insight into the experience of the families they care for. In total, 17 Discovery Interviews recorded during 2012–2014 were transcribed, deidentified, condensed, and read back to 222 staff in 20 different meetings. Families and staff involved in the process provided positive feedback. Over 53% of staff found these sessions extremely valuable, and 46% rated them as valuable. Discovery Interviews were shown to be a powerful tool to engage with families and staff to improve the experience of families in the Queensland Children's Cancer Centre. The sessions where Discovery Interviews were read to clinical teams raised their awareness of the perspectives of families and impacted on the way they delivered care and interacted with families. Staff described the stories as insightful and valued hearing them and discussing ways to improve service, including individual clinical practice, service processes, and family supports.
关键词：family experience; family-centered care; consumer engagement; service improvement; narratives