文章基本信息

标题：Narratives on health: reflections on care for people with disabilities and genetic disease within the Brazilian National Health System
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作者：Daniela Koeller Rodrigues Vieira ; César Augusto Orazen Favoreto
期刊名称：Interface - Comunicação, Saúde, Educação
印刷版ISSN：1414-3283
电子版ISSN：1807-5762
出版年度：2016
卷号：20
期号：56
页码：89-98
语种：English
出版社：Universidade Estadual Paulista Júlio de Mesquita Filho
摘要：The factors that influence effective healthcare for people with disabilities and genetic diseases within SUS include the presence of stigma, relationships marked by biomedical power and institutional violence. This article aimed to discuss the issues that run through this care, guided by narratives on this author’s experiences of caring for children and families. This test was written in essay format and discusses the issues surrounding healthcare and benefits, within the context of practices driven by biomedicine and biopower. The narratives reveal the transforming capacity of affection and additional potential of meetings, marked by circuits of benefits and guided by construction of interpersonal relationships between professionals and service users that promote new spaces and forms of healthcare.
其他摘要：The factors that influence effective healthcare for people with disabilities and genetic diseases within SUS include the presence of stigma, relationships marked by biomedical power and institutional violence. This article aimed to discuss the issues that run through this care, guided by narratives on this author’s experiences of caring for children and families. This test was written in essay format and discusses the issues surrounding healthcare and benefits, within the context of practices driven by biomedicine and biopower. The narratives reveal the transforming capacity of affection and additional potential of meetings, marked by circuits of benefits and guided by construction of interpersonal relationships between professionals and service users that promote new spaces and forms of healthcare.
关键词：Comprehensive Health Care; Narrative; Medical genetics; Disabled persons.
其他关键词：Comprehensive Health Care; Narrative; Medical genetics; Disabled persons.