文章基本信息

标题：Itinerário de utentes com fibrose pulmonar idiopática atendidos via judicial ou administrativa pela Secretaria de Estado de Saúde do Pará
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作者：Agnes Nami Kaminosono ; Ana Maria Ferreira Gillet ; Emanuelle Karine Sena Sousa 等
期刊名称：Research, Society and Development
电子版ISSN：2525-3409
出版年度：2021
卷号：10
期号：16
页码：1-21
DOI：10.33448/rsd-v10i16.23936
语种：English
出版社：Grupo de Pesquisa Metodologias em Ensino e Aprendizagem em Ciências
摘要：Objective: To investigate the itinerary of users who had access to the antifibrotic drugs nintedanib and pirfenidone via judicial or administrative procedures; as well as their respective socioeconomic and epidemiological profiles served by the Judicial and Administrative Demands Pharmacy. Method: This is a cross-sectional, retrospective, analytical-descriptive, qualitative-quantitative study. The socioeconomic and demographic data of the users are presented. Results: The findings inform us that there is a prevalence of demand through the administrative process in relation to the demand through the courts. Users find it difficult to register, renew and access the medicine; therefore, they present difficulties for adherence and continuity of treatment. Conclusion: It is inferred that there are difficulties in accessing treatment for IPF in Pará, and treatment adherence and continuity are hampered by the inconstancy in the acquisition of antifibrotics. There is damage to the quality of life of users. There were high expenses with the acquisition of antifibrotic drugs.
关键词：Rare Diseases;Idiopathic Pulmonary Fibrosis;Pharmaceutical Care;Pharmaceutical Assistance;Medicines.