文章基本信息

标题：Aspectos clínicos e psicossociais na perspectiva de portadores da hemofilia: uma análise sobre o processo saúde-doena e qualidade de vida
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作者：Isabella Bueno dos Santos ; Natanias Macson da Silva ; Tassio Danilo Rego de Queiroz 等
期刊名称：Research, Society and Development
电子版ISSN：2525-3409
出版年度：2021
卷号：10
期号：12
页码：1-22
DOI：10.33448/rsd-v10i12.20885
语种：English
出版社：Grupo de Pesquisa Metodologias em Ensino e Aprendizagem em Ciências
摘要：The aim was to analyse the psychosocial and clinical aspects related to hemophilia and its impact on the quality of life of patients with hemophilia treated in a specialised service in the municipality of Mossoró, Rio Grande do Norte, Brazil. This is a qualitative, exploratory and cross-sectional study, carried out with 11 patients of hemophilia submitted to interviews guided by a semi-structured questionnaire, recorded with permission and transcribed in full. The data collected were subjected to thematic content analysis proposed by Bardin and resulted in three categories: (1) Self-knowledge of people living with hemophilia, (2) Comprehensive Health Care for Hemophilia patients, (3) Relationship between sociability, mental health and denouement of prejudice and stigmatisation experienced by hemophiliacs. The data also allowed a synthesis on socio-demographic data and an analysis on strategies for maintaining the quality of life of hemophiliacs. It is concluded that it is of fundamental importance to invest in health care services, including the training of the multiprofessional team, the financing of research and technology for therapeutic advances, the encouragement of psychological follow-up and the inclusion of Complementary and Integrative Health Practices (CIHP), as well as the dissemination of knowledge about this hematological dysfunction in society, as tools for maintaining and improving the quality of life of hemophilia patients.
关键词：Patient care team;Quality of life;Blood coagulation disorders;Hemophilia A;Hemophilia B.