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标题：O papel da extenso universitária no contexto da pandemia de COVID-19 para famílias com crianas e adolescentes portadores de doena falciforme: relato de experiência
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作者：Luiza Gabriela Noronha Santiago ; Elaine Cristina Rodrigues Gesteira ; Charlene Regina da Cruz 等
期刊名称：Research, Society and Development
电子版ISSN：2525-3409
出版年度：2021
卷号：10
期号：11
页码：1-8
DOI：10.33448/rsd-v10i11.19590
语种：English
出版社：Grupo de Pesquisa Metodologias em Ensino e Aprendizagem em Ciências
摘要：Sickle Cell Disease (SCD) is the nomenclature used to designate a set of hemoglobinopathies resulting from a mutation in the beta-globin gene on chromosome 11. Among them, sickle cell anemia (HbSS) stands out for its high prevalence and high potential for morbidity and mortality. In this scenario, a family with a child or adolescent with SCD changes its biopsychosocial dynamic entirely, especially in the context of the COVID-19 pandemic, in which social distancing is recommended. This work intend to present the successful experience of the Extension Program "Educar Falciforme", linked to the Federal University of So Joo Del-Rei, a pillar in the support network for the management of patients and families with SDC, in a period that new processes, especially online, became necessary for the provision of healthcare for chronic non-communicable diseases (NCDs). The experience report and the bibliographical research were proposed as a methodology. Based on this experience, the results showed that despite adverse circumstances, virtual dynamics are necessary to maintain comprehensive care for families with SCD in a pandemic period. It is concluded that the extension is an important tool for support in the health community network.
关键词：Health Education;Sickle Cell Disease;COVID-19;Child care;Family health.