文章基本信息

标题：A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome
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作者：Elysângela Dittz Duarte ; Patrícia P. Braga ; Bárbara R. Guimarães 等
期刊名称：Healthcare
电子版ISSN：2227-9032
出版年度：2022
卷号：10
期号：3
DOI：10.3390/healthcare10030546
语种：English
出版社：MDPI Publishing
摘要：Parenting a child with Down syndrome can sometimes present certain difficulties and, thus, spirituality may function as a dimension related to finding meaning in life and as a coping resource. Spirituality is a critical dimension of nursing care, but scarce knowledge is available to specifically inform family nursing practice. The aim of this study was to explore the spiritual aspects of parenting a child with Down syndrome, as a qualitative secondary analysis. This is an observational qualitative study, based on in-depth interviews from 42 participants. Data analysis found seven categories that concern meaning and purpose in life: hope, family strength, spiritual practices, personal beliefs, and love, and trust in healthcare providers. Spirituality is a resource in parents’ lives who are living in this situation. Nurses should consider this dimension in supporting families and in improving management of this life and health condition.
关键词：enbeliefsdown syndromehopefamilyparentingspirituality