文章基本信息

标题：An exploration of the experience of parents with children with autism spectrum disorder after diagnosis and intervention
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作者：Ben Milbourn ; Marita Falkmer ; Melissa H. Black 等
期刊名称：Scandinavian Journal of Child and Adolescent Psychiatry and Psychology
印刷版ISSN：2245-8875
出版年度：2017
卷号：5
期号：3
页码：104-110
DOI：10.21307/sjcapp-2017-014
语种：English
出版社：Scandinavian Journal of Child and Adolescent Psychiatry and Psychology
摘要：Delays and difficulties in both diagnosis and access to services can compound existing stressors experienced by families with children with autism spectrum disorder. Early and accurate diagnosis and appropriate intervention may not only improve child-specific outcomes but may also mitigate some of the stressors impacting family relationships and quality of life. We aimed to understand the experience of over 500 families that had sought autism spectrum disorder diagnosis and intervention, their perceptions of the efficacy of these services, and the impact that this process had on their family life. Parents overwhelmingly described frustration with access to a timely diagnosis, specialized intervention services, and funding that impacted their family life and relationships. However, parents simultaneously reported positive perceptions of change as a consequence of diagnosis and effective intervention.
关键词：Keywords:autismdiagnosisservicesfamilyqualitative