文章基本信息

标题：The experience of caregivers of people living with serious mental disorders: a study from rural Ghana
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作者：Kenneth Ayuurebobi Ae-Ngibise ; Victor Christian Korley Doku ; Kwaku Poku Asante 等
期刊名称：Global Health Action
印刷版ISSN：1654-9716
电子版ISSN：1654-9880
出版年度：2015
卷号：8
期号：0
DOI：10.3402/gha.v8.26957
语种：English
出版社：Taylor & Francis
摘要：Background: Families and friends who give care to people with mental disorders (MDs) are affected in a variety of ways and degrees. The interplay of caregiving consequences: poverty, discrimination and stigma, lack of support from others, diminished social relationships, depression, emotional trauma, and poor or interrupted sleep are associated caregiver burden.Objective: The burden of care on caregivers of people living with MDs was assessed in two districts located in the middle part of Ghana. Coping strategies and available support for caregivers of MDs were also assessed.Design: A qualitative study was carried out involving 75 caregivers of participants with MDs registered within the Kintampo Health and Demographic Surveillance Systems. Data were gathered from caregivers about their experiences in providing care for their relations with MDs.Results: Caregivers reported various degrees of burden, which included financial, social exclusion, emotional, depression, and inadequate time for other social responsibilities. Responsibilities around caregiving were mostly shared among close relatives but to a varying and limited extent. Religious prayers and the anticipation of cure were the main coping strategies adopted by caregivers, with expectation of new treatments being discovered.Conclusions: Emotional distress, stigma, financial burden, lack of support networks, social exclusion, health impact, and absence of decentralised mental health services were experienced by family caregivers. These findings highlight the need for interventions to support people with MDs and their caregivers. This might include policy development and implementation that will decentralise mental health care provision including psychosocial support for caregivers. This will ameliorate families’ financial and emotional burden, facilitate early diagnosis and management, reduce travel time to seek care, and improve the quality of life of family caregivers of persons with MDs.Keywords: burden; primary caregiver; mental disorders; stigma; KintampoCitation: Glob Health Action 2015, 8: 26957 - http://dx.doi.org/10.3402/gha.v8.26957Responsible Editor: Malin Eriksson, Umeå University, Sweden.Published: 11 May 2015
关键词：Public Health; Global Health; Epidemiology; Sociology; Health Systems;burden; primary caregiver; mental disorders; stigma; Kintampo;Mental health; Mental illness prevention